Family and Friends of Preemies

Adult Books

The Premature Baby Book : Everything You Need to know About Your Premature Baby from Birth to Age One.  Jim and Martha Sears.  New York:  Little, Brown and Company, 2004. (618.92 SEA)

The Preemie Parents’  Companion: The Essential Guide to Caring for Your Premature Baby in the Hospital, at Home, and Through the First Years.  Susan L. Madden.  Boston: Harvard Common Press, 2000. (618.92 MAD)

Parenting Your Premature Baby and Child: The Emotional Journey.  Davis, Deborah L.  Golden, CO:  Fulcrum Publishing, 2004.  (618.92 DAV)

Preemies: The Essential Guide for Parents of Premature Babies.  Dana Wechsler Linden, Emma Trenti Paroli and Mia Wechsler Doron.  Pocket Books, 2000.  Written by a neonatalogist and parents of premature infants, this book provides information from pregnancy, through the hospital experience, after discharge and into early childhood.  Uses a question and answer format that allows parents to easily obtain information. (618.92 LIN)

Your Premature Baby and Child: Helpful Answers and Advice for Parents.  Amy Tracy, Dianne Mahonet and Judy Bernbaum.  Berkley Publishing Group, 1999.  Addresses the emotional aspects of caring for a premature infant and detailed information regarding medical concerns, discharge, early development and early intervention.  (618.92 TRA)

What to Do When Your Baby is Premature: A Parent’s Handbook for Coping with High-Risk Pregnancy and Caring for the Preterm Infant.  Joseph A. Garcia Prats and Sharron Simmons-Hornfischer.  Three Rivers Press, 2000. (618.92 GAR)

Alex: The Fathering of a Preemie.  Jeff Stimpson.  Academy Chicago Publishers, 2004. (618.92 STI)

Kangaroo Care: The Best You Can Do to Help Your Premature Infant.  Susan Luddington-Hoe, Susan Galant and Anthony Hadeed.  Bantam Doubleday Dell Publishing, 1993.  (618.92 LUD)

The Nursing Mother’s Companion.  Kathleen Huggins.  Boston, MA: Harvard Common Press, 2005.  Written by an experienced lactation consultant, this book provides a clear description of successful breastfeeding tips and practical information for tackling nursing problems.  Addresses issues such as milk supply, pumping, positioning, drug safety, going back to work and soreness.  Provides special attention to nursing the premature infant.  (649.33 HUG)

The Womanly Art of Breastfeeding.  La Leche League International.  Plume, 2004.  This book provides a step-by-step guide to the early months, common concerns, problems and weaning.  Also includes specialized information related to nutrition, sleep issues, the working mother, and the father’s role in breast-feeding. (649.33 WOM)

Children’s Books

The Tiniest Warrior of All.  Nicola JD Maher.  Oblio Press, 2005.  (E MAH)

No Bigger Than My Teddy Bear.  Valerie Pankow.  Petaluman, CA:  Family Books, 2004.  A children’s book in which a little boy describes how the NICU staff take care of his premature baby brother.  (E PAN)

Believe in Katie Lynn.  Bartholomew Resta, MD and Kitty Harvill.  Nashville, TN:  Eggman Publishing, Inc.  1995.  (ISBN: A children’s book in which a NICU baby doesn’t thrive until her mother is allowed to hold her.  This book describes the way NICUs used to be, not the way they are now.  We recommend the book because the drawings may help children understand what a NICU looks like, and the sort of equipment that they will see if they visit.  (E RES)

My Baby Sister is a Preemie.  Diana M. Amadeo.  Zonderkidz, 2005. (E AMA)

Web Resources

  • March of Dimes Prematurity Website
    Excellent resource focusing on Parenting in the NICU; Coping with the NICU Experience; Family and Friends; Leaving the NICU; Grief & Loss; Glossary of Terms and the NICU Family Support Program.
  • Premature
    Website maintained by a NICU nurse who is also the mother of the preemie.  Includes articles about preemie issues, NICU do’s and don’ts, resources for preemie parents and nurses, and dozens of wonderful “imagines” from both parents and nurses.
  • ComeUnity:  Premature Baby, Premature Child
    Articles and resources for parenting your premature baby and child
  • CaringBridge
    Website that allows you to easily create a secure website in which you  can update families and friends about your baby’s condition.
  • Carepages
    Another free, personal website that allows you communicated with family and friends about your baby’s condition.
  • Center For Loss in Multiple Birth (CLIMB, Inc.)
    Website that provides information and support for those experiencing the loss of one (or more) multiples.
    Extensive website with articles covering a wide range of topics of interest to family and friends of premature babies and children.
    This site, which is a project of the Nemours Foundation, offers high quality medical information about babies and children of all ages, including preemies.
    Extensive site that includes all sorts of information, discussion lists and forums relevant to babies and parenting.  Includes sections on topics such as prematurity and multiples.  An excellent resource for you to use now, and as your child grows and develops.